The Doc called yesterday with the diagnosis. I've got multiple myeloma. I've been avoiding learning too much about it even though that is what has been suspected. I didn't want to waste energy learning about something the that I 'might' have. Now I'll be spending some time on that website, multiplemyeloma.org.
First today we are off to Roseville to pick up my chemo drugs. Luckily I get to take them orally. Sounds like the side effects aren't too gnarly; just drowsiness which is the primary side effect on everything else I am taking so... whatever. I'll be on the chemo for a few months. Perhaps then a bone marrow transplant but that is yet to be determined. It was hard to get the news all over again. I thought I had my mind wrapped around having cancer but it feels a little like I am starting over again.
The Chickenhawk and I were awake for a couple hours last night. We did some good talking. She is feeling a lot of anger, and who blames her. We had a pretty sweet life up until now. I've got a lot of things that I have to give up and so does she. For all of you sending good thoughts, prayers, healing vibes and cosmic psycho rays please send some to her. This is going to be a major test for her. For my part, I am going to give her as much love and support as I can.
So here we go into the next phase. I am ready.
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- Sorelegs
- 42 Year Old father of 2. Endurance athlete, cancer survivor recovering from a stem cell transplant. Living life in the Gold Country of California and working as a mortgage consultant.
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7 comments:
On the positive side, you know exactly what it is now, which makes it *easier* to fight. As a friend of mine who has been sick since she was 13 said "Praise God, I know what I have. It is such a relief to find out so that I can treat it". She has lymes disease by the way in the worst stages.
Sarah is a giant quartz -granite mammoth of a spirit and I am so very happy that you have each other.
I am glad there is finally an answer- that means you (and your team) can change gears and be proactive
Being so far away, we are thankful for the family, community, spiritual & cyber support you have.
All our love to you, the Chickenhawk and the dollies, M & C
Spence - I have tears for you and "chickenhawk" (can I call her something else?) - I hope for the best for you. Things could be a lot worse, so try to keep yourself, and your girl, focused on the positives. Arm yourselves with knowledge, and remember that knowledge is power. You can beat this shit Spencer. You really can.
Remember when your child two went over her handlebars and you asked my child two for a band-aid?
He ran and brought back a first aid kit bigger than his body. He had a job. He was focused, like a border collie.
Now it looks like time to focus.
May your first aid kit hold all the love, hope, bone marrow, meds, bud, books, sleep, daffodils, support and Monty Python episodes that you will need.
...spencer & sarah...spent some time at the MMRF site just to get a little familiar w/ your situation...
...sarah, don't know if you're a cyclist or not, but the fact that sorelegs is, is a good thing (a) for the obvious reason that being fit gives anyone an advantage in a medical situation and (b) as a cyclist, (btw, ain't no real 'puddin' in a serious cyclist & we all know he's serious), your man's mind & body are used to focusing, fighting & yet finding that calm, that zen spot, in the middle of all that activity...
...i'm betting dollars to donuts, that when it comes down to crunch time, if spencer does need an operation, he's gonna be the one reassuring you & all the good folks surrounding your family nucleus...
...just plant that seed of belief that no matter how tough this battle becomes for the two of you (& your girls), you're not just gonna make it, but you're gonna come through like total PRO's...
...probably the hardest thing to do is suspend the worrying, but do it, it really is counter productive...find the positive & live it...
...like judi says, 'you can beat this shit'...
Thanks all for the comments. BGW... Sarah is a rider and a big puddin' She got 1st in the beginner class at 2007 Cool Mtb race. The funny thing is that she did not know she was in first. She was just out for a ride.
Me, I am ready to rip the legs off of this thing. I will throw everything I've got at it. It will be a battle royale. For now I am sitting in the big peaceful draft of my team. I am tranquil and waiting for my chance to attack. Sounds like this whole thing is going to take about a year.
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